debate
Chief Physician Sigbjørn Rogne believes the MS Society and neurologists are misleading about diagnosis, anti-inflammatory drugs and stem cell therapy.
Doctor and MS Patient: Sigbjørn Rogne is a doctor and has been diagnosed with multiple sclerosis (MS). Photo: private
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External comments: This is a discussion article. Analysis and author’s point of view.
multiple sclerosis (MS) Significantly increased mortality, randomized controlled trials show that anti-inflammatory drugs It only has a moderate effect And that stem cell therapy has a clearly better effect. But neurologists and the MS Society do not report an increased death rate, say anti-inflammatory drugs are very effective and advise against stem cell therapy.
Neurologist Lars Boe, Head of the National MS Competence Service at Hochland University Hospital, said on 06.09.14 the following: Bergens Tidende About Stem Cell Therapy (chemotherapy with stem cells): “When we have good alternatives (read: brake drugs), it goes without saying that we are reluctant to recommend treatments that can potentially kill people. MS itself is not fatal.
We are at the same distance
Frederick Bell, professor of neurology At Karolinska in Stockholm, Writing in 2020 is free Overview article In the “Journal of Internal Medicine,” MS reports that MS reduces life expectancy by 7 to 14 years. the report Norway’s “Death rate from various causes 1951-98” on the website of the Norwegian Institute of Public Health describes the increasing MS mortality rate broken down by age and sex.
Randomized controlled studies show that after two years of treatment with so-called high-potency anti-inflammatory drugs, 50 to 70 percent of disease activity is still evident and quality of life does not improve significantly.
A controlled randomization Stady From 2019 it shows that after two years of stem cell therapy, only 10 percent have obvious disease activity and the quality of life improves significantly. The death rate from stem cell therapy is less than 0.2% and serious complications are rare. No MS patient died from stem cell therapy in Sweden, Norway, Florence or Moscow.
Do you dare open your eyes, Sandra Burch?
So I think the MS Society and neurologists misleading about prognosis, Brake drugs and stem cell therapy, and it disrespects those who have died and are at risk of dying from MS.
Why is this important?
MS patients with joint Disease activity has reduced quality of life due to chronic inflammation in the brain and spinal cord. Chronic disease activity causes increased balance difficulties, urination difficulties, constipation, pain, difficulty seeing, sleeping difficulties, hypersensitivity to sound, fatigue, cognitive impairment, weakness, speech and swallowing difficulties, etc. The list is endless, because inflammation happens blindly.
However, chronic disease activity during treatment with anti-inflammatory drugs is not considered a failure of treatment by neurologists. Multiple sclerosis patients receive more effective anti-inflammatory drugs or stem cell therapy only if there are sufficient attacks or new lesions in the brain and spinal cord on MRI images, although MRI scans with current technology do not have sufficient resolution. An episode is defined as a new symptom or worsening of existing symptoms that lasts more than one day. At first, attacks occur on average every 2 to 3 years and then decrease. New lesions on MR images also decrease with age.
How much can we lose?
MS patients with joint Disease activity, stem cell therapy is rejected by neurologists, on the grounds that MS is not a fatal disease, anti-inflammatory drugs are highly effective and stem cell therapy is risky. There is no correct part.
Why spend time on this?
After two attacks in 2009, I was diagnosed with MS. Until the summer of 2014, I injected the brake drug Copaxone daily. Then came a new attack in the form of double vision. Copaxone is one of the least expensive and least effective brake medications. It costs approx. NOK 85,000 per year, with relatively few side effects.
My condition gradually got worse after 2009, I had to stop working with patients, I got other assignments and I was on my way out of working life. I had chronic disease activity limiting quality of life in the form of, among other things, fatigue, cognitive problems, hypersensitivity to sound, constipation, articulation, balance, and significant sleep difficulties. Neurologists told me that I had MS, that anti-inflammatory medication had a good effect and that I was not suitable for stem cell therapy.
Dear Parents Gag
said my little brother About Hanna Vesterager who improved a lot in 2011 from her stem cell treatment at Karolinska in Stockholm. It cost NOK 700,000. You were recommended to me by a Facebook group created by Norwegian women who underwent stem cell therapy in Moscow. I found important information, and paid NOK 350,000 for stem cell treatment at Careggi University Hospital in Florence from January to February 2015. I really got better during the chemotherapy, and my quality of life went up rapidly during the three-week isolated stay. In the following months, chronic disease activity subsided. Since the fall of 2016, I have returned to normal functioning, without brake and relapse meds. I got my life back.
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